MommyBizCentral

pwillo2 · Mon May 07, 2007 6:02 pm Prayers and Soda/Beer Tabs Please!

This is a message another WAHM posted..I do not know her personally but being a mom myself my heart goes out to her and her child. I would like to help in any way that I can so I am passing this on to you!

Hello everyone. I know alot of you don't know me and some of you
have only have talked to me a few times. But if you would take a
moment to listen to what I have to say and please think about
helping. I am not asking you to dig in you pocket and give money I
am only asking to take the tab off the pop or beer cans. Sorry if I
am out of place posting this message here.

Three years ago my husband died from a rare genetic disorder called
Ehlers-Danlos vascular type (VEDS). VEDS is life treating and most
people that have VEDS don't live pass the age of 48. Many have died
before the age of 30. My husband was 27 years old when he passed
away and his mother was 30. VEDS has been passed down to my
daughter. Her name is Chloe and she is 6 years old. On the outside
most of the time Chloe looks healty but on the inside she is a very
sick little girl. Every time I have to take Chloe to the E.R. when
she is sick or hurt and I have to tell the doctors that my baby has
VEDS. They just look at me and say I'm so very sorry. To find a
doctor that will just see Chloe just for a cold I have to drive 1
hour. Doctors are scared to treat her because not enough is known
about VEDS. And the doctors know one little mistake could take her
life. So they refuse to see her. See there isn't enough known about
VEDS and not a lot of money to do studies on it. So I am asking
everyone I know if they would save pop tabs to and have them sent to
me and all the money will be donated to the EDS foundation. I will
do anything I have to to help save my little girl for as long as I
can.
We will start collecting pop tabs May 2007 (EDS awarness month) and
keep collecting for one year in May 2008 we will take them in and
donate any money that is earned and donate it to The Ehlers- Danlos
Foundaton.
I have made a my space page for my husband please feel free to vist
it and if you like please become our friend
www.myspace. com/bradgiesige.
Please help me save my little girl and others with EDS
Thank you for all your help and listing
Jessica Giesige
629 N Walnut St
Celina, Ohio 45822
helpingchloe@ yahoo.com

If you would like to learn more about VEDS and other types of EDS
please vist
http://www.ednf. org
http://www.nlm. nih.gov/medlinep lus/ency/ article/001468. h

--------------------------------------------------------------------------------
Jessica

Darlene · Tue May 08, 2007 2:10 am

This is very sad. I will keep this little girl in my prayers.

Rosalee · Wed May 16, 2007 8:04 pm prayers....

How sad & heart breaking!! All of you are in my thoughts & prayers- May God give you strength, comfort , guidance & love.

Rosalee Decker
Home & Garden Party
www.homeandgardenparty.com
Rosalee832@hotmail.com
1-360-458-5680
This is the Day that the Lord has made; we shall rejoice & be glad in it